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March 19, 2022 Jonah Aline Daniel
This Spring (5782), as part of our Ritual Box offerings, we collaboratively developed a collection of Disability Justice themed Haggadah Supplements for inclusion in a Passover Seder. If you ordered a Ritual Box from us, you received specially printed versions of these supplements.
Here is a link to the evolving Google Doc: tinyurl.com/nbchaggadah. Here's a 'text only' version of the Google Doc: tinyurl.com/nbchaggadahtext. Both Google Doc versions have screen reader, braille and screen magnifier support enabled. We will add resources and materials to the Google Doc supplements as they come across our desk but the main offerings will be staying the same.
Enclosed in the Next Year in Freedom Haggadah Offering:
Thank you to Sins Invalid, Toby Kramer, Simonne Bonfatti,
Nomy Lamm Patty Berne, Leah Lakshmi Piepzna-Samarasinha, Susan Raffo,
OakCLT and the Disability Justice Culture Club (DJCC) are raising funds to acquire and permanently preserve the DJCC house - the home that Stacey Park Milbern purchased in 2018 to create both an affordable haven for low-income Disabled BIPOC in a rapidly-gentrifying Bay Area, and a radically accessible space in the East Bay for community building and movement work.
Sins Invalid is a disability justice based performance project that incubates and celebrates artists with disabilities, centralizing artists of color and queer and gender-variant artists as communities who have been historically marginalized.
Ukraine Herbal Solidarity is a grassroots response to the invasion of Ukraine. The project’s aspirational aims are:
We are healers, medical practitioners, organizers, media makers, cultural and memory workers who believe that all deserve care and support during times of crisis, vulnerability & resistance. We come together to inform and shape a vision for collective care and safety while integrating models of wellness that seek to transform and intervene on medical violence, harms, and abuses rooted in racism and capitalism. We are engaging individuals, communities and institutions to remember these abuses and harms by catalyzing research, action and movement-building strategies. We do this through the creation of popular education tools, workshop curriculum, cultural and political events and more.
After 2 years of the Covid-19 pandemic, our world is significantly more disabled and chronically-ill. As we saw with HIV/AIDS, disease outbreaks expose the need for large-scale change in healthcare, public health, and other unjust structures. Yet even as the pandemic continues to claim lives, we are pressured to return to a ‘business as normal’ that has never centered the needs of disabled and chronically ill people. In the third year of the pandemic, we must end practices and policies that ignore, and further marginalize, disabled and chronically-ill people.
... Since the start of the pandemic, unabashed ableism has run rampant among public health officials, the government, and social media. Although people with disabilities of the mind and body have historically faced marginalization, exclusion, and oppression long before now, COVID-19 and the subsequent safety guidelines have made overt the long-standing institutional and systemic inequalities that span across our culture, from the medical system to workplace policies. These complexities are exacerbated when race and other marginalized identities come into play, particularly for Black disabled people, as we also face racial health disparities, like the disproportionate misdiagnoses of Black people due to culturally insensitive medical education...
... I’ve compiled some lists, thoughts and strategies on the disabled prepping I’ve been doing. Like everything, this is a work in progress and some things may or may not work for or apply for you- take what works and leave the rest... To me, the five cornerstones of prepping are Food, Health Supplies,Water, Fuel (for heating and eating), and Mutual Aid...
…I fear that we’re moving toward a reality where it’s increasingly risky for many elders, sick and disabled people to leave their homes, with the able-bodied creating a strange new kind of public society without us, while online access to public spaces like college campuses and religious services wanes. This is tragically ironic in its carelessness. Disability justice activist and writer, Alice Wong, coined the phrase the “future is disabled” and the disabled author, Leah Lakshmi Piepenza-Samarsinha, has a book forthcoming by that title. This phrase speaks to a very tangible reality. Already, more than half of this country has a chronic illness, and almost one in four Americans is disabled. As the population ages and we face more disabling conditions, like long COVID and environmental illness, it seems likely that the majority of the population will be sick and/or disabled in the near future.
The mainstream world does not yet grasp just how much would be lost if public spaces became even less accessible due to endemic COVID. Just as (largely) able-bodied medical authorities vastly underestimate the happiness level of disabled individuals, able-bodied society, as a whole, underestimates the creativity, joy, innovation and connectivity of disabled culture. On a warming planet, as life gets more tenuous, disabled communities have some of the knowledge, experience and innovations needed for everyone’s future. My chronically ill life has taught me how to slow down, give and receive care, sit with uncertainty and love unconditionally. These skills are particularly valuable for life on this chronically ill planet…
INTERSECTIONALITY “We do not live single issue lives” –Audre Lorde. Ableism, coupled with white supremacy, supported by capitalism, underscored by heteropatriarchy, has rendered the vast majority of the world “invalid.”
LEADERSHIP OF THOSE MOST IMPACTED “We are led by those who most know these systems.” –Aurora Levins Morales
ANTI-CAPITALIST POLITIC In an economy that sees land and humans as components of profit, we are anti-capitalist by the nature of having non-conforming body/minds.
COMMITMENT TO CROSS-MOVEMENT ORGANIZING Shifting how social justice movements understand disability and contextualize ableism, disability justice lends itself to politics of alliance.
RECOGNIZING WHOLENESS People have inherent worth outside of commodity relations and capitalist notions of productivity. Each person is full of history and life experience.
SUSTAINABILITY We pace ourselves, individually and collectively, to be sustained long term. Our embodied experiences guide us toward ongoing justice and liberation.
COMMITMENT TO CROSS-DISABILITY SOLIDARITY We honor the insights and participation of all of our community members, knowing that isolation undermines collective liberation.
INTERDEPENDENCE We meet each others’ needs as we build toward liberation, knowing that state solutions inevitably extend into further control over lives.
COLLECTIVE ACCESS As brown, black and queer-bodied disabled people we bring flexibility and creative nuance that go beyond able-bodied/minded normativity, to be in community with each other.
COLLECTIVE LIBERATION No body or mind can be left behind – only moving together can we accomplish the revolution we require.
In addition to sources already listed above, for the Principles of Disability Justice 4 (but 10) Questions Supplement we referenced:
- Ten principles of disability justice published in WSQ: Women's Studies Quarterly, written by Patty Berne, Aurora Levins Morales, David Langstaff, and Sins Invalid
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